S. 805, introduced on May 1, is a vital step toward the day when advanced research will find ways to halt, and even cure, life-threatening muscular dystrophy. Muscular dystrophy is a genetic disorder, actually a number of separate disorders, that are characterized by weakening and eventual wasting of muscles throughout the body. A quarter of a million Americans of all ages are affected by these disorders. One form, Duchenne, strikes young boys and usually takes their lives before they reach their twenties. Other forms that affect adults are also severely debilitating and can be devastating to the victims and their families. Since 1966, entertainer Jerry Lewis has hosted the annual Muscular Dystrophy Labor Day Telethon, calling the Nation's attention to the muscular dystrophies and seeking help for individuals and families affected by these diseases. Jerry Lewis is the National Chairman of the Muscular Dystrophy Association which, through its Telethon and year-round fund raising activities, has raised hundreds of millions of dollars for programs of direct patient services, research and summer camp.
Editor's note · Context
Discussing the importance of S. 805 in addressing muscular dystrophy.
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