James Oberstar: “Amendment offered by Mr. Oberstar: At the end of the bill (before the short title), insert the following: TITLE…”

“Amendment offered by Mr. Oberstar: At the end of the bill (before the short title), insert the following: TITLE ADDITIONAL GENERAL PROVISIONS DEPARTMENT OF HEALTH AND HUMAN SERVICES PROGRAMS FOR PATIENTS WITH FATAL CHRONIC ILLNESSES (a) Establishment of Programs--The Secretary of Health and Human Services shall carry out research, demonstration, and education programs with respect to fatal chronic illness through the Public Health Service. (b) Studies on End-of-Life Care--The Secretary shall conduct studies on end-of-life care through all relevant agencies and through the Assistant Secretary for Planning and Evaluation. Such studies shall include an examination of the development of practice parameters applicable to such care as well as research regarding such care. Such studies shall also include an annual report from the Secretary to the appropriate committees for oversight in Congress and to the Special Committee on Aging in the Senate on service delivery and quality of life for persons living through fatal chronic illness and their families and professional caregivers.”