12/16/2013
https://www.congress.gov...
"The National Organization for Rare Disorders (NORD) has been a leader for decades in the effort to increase information on the diagnosis and treatment of rare disorders."
"They are helpful, but not required?"
"What if a State, like, say, oh, I don't know, Pennsylvania, say, for example--I don't know why I came up with that--didn't provide regulation?"
"Could this be part of your bill of rights?"