05/29/2012
https://www.congress.gov...
"The National Organization for Rare Disorders (NORD) has been a leader for decades in the effort to increase information on the diagnosis and treatment of rare disorders."
"Thank you for holding today's hearing on this important issue to seniors in Minnesota and across the country."
"Well, that is a Shonda, as we say."
"But for now, you are not suggesting any Federal regulation?"