On the recordDecember 17, 2021
I thank my dear friend from Delaware--always Delaware--but truly a friend; a friend on many different issues, but a man whom I have come to know is motivated not by the politics of what goes on in this body but by the passion and his interest in doing good, doing good policy and doing good things for people. And what we are speaking to today, recognizing the significant passage of the ACT for ALS Act that happened last evening unanimously, as he has pointed out, that this is not only good for the body, if you will, to say we were able to move good legislation forward, good policy legislation forward, but this is a gift. This is a gift of hope for those who live with ALS, for those families who are part of that journey of those who live with ALS. ALS, as Senator Coons has noted, is an awful, awful disease. Some would suggest, and I certainly would, that it is probably the worst disease to be afflicted with, when your body literally closes in on you while your mind is still active and vibrant. I have a very personal connection to ALS. I think many of us have very personal connections to ALS. I wish that we didn't have these personal connections to this hideous disease, but we do, and that connection allows us to learn and understand a little bit more about it. And I think the most heartbreaking thing that I realized, when my family member was diagnosed with ALS, my cousin's husband, was that there was no treatment. There was no hope. There was no hope.…





