02/11/2013
https://www.congress.gov...
"Newborn screening has a profound impact on children with SCID and their families."
"I am sincerely looking forward to working with my colleague to move the reauthorization of the Newborn Screening Saves Lives Act throughout the Senate this Congress."
"Can you share with us what mandating the CCHD screening, and/or not letting it remain optional, has meant for other parents in the State that you have spoken with?"
"I do think it is really important to reiterate, again, that in 2011, the CDC recognized the advances in newborn screening as one of the 10 great public achievements in the United States during the dec..."