07/20/2020
https://congress.gov...
"Currently, children and adults who are diagnosed with serious digestive disorders must pay out-of-pocket for medically necessary food."
"Each year, more than 7,000 infants are diagnosed with an inherited metabolic disorder."
"Patients often manage their complex nutritional needs with prescribed specialized formulas and, without them, risk brain damage, repeated hospitalizations, and in some cases, even death."
"Americans struggle every day to navigate treatments for life-threatening health conditions and all too often this battle comes with cost barriers."