On the recordNovember 15, 2013
Today I rise in recognition of International 15q Day. Now, what is International 15q Day? It is a day to raise awareness of the similarities between Angelman, Prader-Willi, and Chromosome 15q Duplication syndromes. All three are genetic disorders originating in the 15th chromosome. My offices are supporting these efforts today to shine a light on those that suffer from these disorders. These disorders are so rare that they do not get the attention or dedication to research that many other diseases and disorders do. My son, Teddy, now almost 6 years old, was diagnosed with Angelman syndrome in early 2010. Angelman significantly impairs his capacity for motor development and severely inhibits his intellectual development. In addition to that, it is likely he will never speak. But through his challenges, he is such an inspiration to everyone he meets. We do not know what Teddy's ultimate impact on the world will be, but we know it, and those of these other children, will be great. My wife, Kathy and I, are so humbled by the support of our family and friends, including my staff, who, in all of our offices today, are wearing blue to recognize International 15q Day for Teddy, his fellow angels, and all those affected by these disorders. Madam Speaker, I encourage all Americans to learn more about these disorders by visiting www.angelman.org. ____________________
