04/09/2024
https://www.congress.gov...
"I think it is kind of sad when you have got a hearing and that all kinds of different ways to make your point are generally available, and here, maybe because of the poignancy and the fact that it is ..."
"As a U.S. Senator, I have been proud since I have been here to represent Main Street, to represent the voice that is not heard, to represent the patient and the family that wonders why."
"I request that the Senate HELP Committee provide a full patient representative hearing from the rare and life threatening disease community."
"I have had the Promising Pathways Act out there, sponsored by many on this Committee, and it is just saying one thing, give some hope to these families that there is more than just what we have been d..."