09/24/2024
https://www.congress.gov...
"As a U.S. Senator, I have been proud since I have been here to represent Main Street, to represent the voice that is not heard, to represent the patient and the family that wonders why."
"I request that the Senate HELP Committee provide a full patient representative hearing from the rare and life threatening disease community."
"I have had the Promising Pathways Act out there, sponsored by many on this Committee, and it is just saying one thing, give some hope to these families that there is more than just what we have been d..."
"the user fee renewal process will not be successful if it ignores the end users of the medicines in the hearing process, or rubberstamps a proposal without patient input."