03/21/2023
https://www.congress.gov...
"I have had the Promising Pathways Act out there, sponsored by many on this Committee, and it is just saying one thing, give some hope to these families that there is more than just what we have been d..."
"I request that the Senate HELP Committee provide a full patient representative hearing from the rare and life threatening disease community."
"As a U.S. Senator, I have been proud since I have been here to represent Main Street, to represent the voice that is not heard, to represent the patient and the family that wonders why."
"I think the Committee should have allowed it, but when that doesn't happen, you go to plan B."