Mike Levin: “I yield 1\1/2\ minutes to the gentleman from Illinois (Mr. Danny K. Davis), another valued member of our committee.”

Michaelle’s determination has connected families across the globe and helped launch new research into a disorder shared by fewer than 100 children worldwide.

The hard part is still ahead of us.

She has shown that one parent's love, paired with tireless resolve, can move the frontiers of medicine forward.

There is also an environmental dimension to this that cannot be ignored.