Lucille Roybal-Allard: “Last week, the Labor-HHS Appropriations Subcommittee had a most remarkable hearing on Down syndrome, which moved us to a…”

“Last week, the Labor-HHS Appropriations Subcommittee had a most remarkable hearing on Down syndrome, which moved us to a new understanding of this disability. DS is a genetic disorder that affects over 300,000 men, women, and children in America. It is the most common chromosomal disorder and the most frequent genetic cause of learning disabilities in children. Each year, approximately 6,000 babies in the United States are born with Down syndrome, a condition resulting from an extra 21st chromosome. Sixty years ago, people with DS had a life expectancy of less than 20 years, and most lived their lives in institutions. Today, due to early medical care and being raised in loving homes, these children can expect to live well into their sixties. Last week's hearing was one of the most emotionally charged and inspirational hearings I can recall as a member of this subcommittee. The room was filled with children and adults with DS and their families, including my young constituent, Jose Cisneros. Amidst the tears, laughter, and applause, we heard inspiring stories about the amazing accomplishments of DS teens and young adults in sports, scouting, community activism, and film acting. We learned that they are graduating from high schools, attending colleges, and working at jobs in their communities.…”