Political Quotes

“this is truly a tragic case. The young woman on my right was born in Guatemala. She suffers from a rare life- threatening disorder called MSP type VI. This is a genetic condition caused by the absence of an enzyme that is needed for the growth of healthy bones and connective tissue. She uses a wheelchair, has a shunt in her brain, and requires a tracheotomy to help her breathe. Because this was a clinical trial in 2003 when Ms. Bueso was 7 years old, doctors invited her and her family to come to California so that she could participate in a clinical trial to treat her condition. That trial led to the development of a treatment that is now approved by the FDA. It is a 6-hour infusion of a prescription drug that replaces the enzyme lacking in people with MSP type VI. Ms. Bueso now receives this lifesaving treatment every week at the University of California San Francisco Children's Hospital. This treatment is not available in Guatemala. If she were removed from the United States, she would no longer have access to the lifesaving medical care she needs. She would die. For the past 10 years, Ms. Bueso and her family have received deferred action from U.S. Citizenship and Immigration Services so that she could continue receiving the treatments that keep her alive. In 2019, she and her family were notified that their extensions of deferred action were denied and that they would be deported if they did not leave the United States within 33 days.…”