Political Quotes

“Mr. Speaker, this week is Rare Disease Day, which will take place on February 29. I want to acknowledge the work of the National Institutes of Health in their efforts to bring down rare diseases. I also want to acknowledge the thousands of Americans who are afflicted with diseases whose systems are so complex that they simply remain undiagnosed. The majority of these disorders have genetic causes, and over half affect children. The National Institutes of Health has joined a worldwide effort with more than 40 countries to recognize and seek better ways to diagnose and treat patients. On February 29, the NIH is observing the fifth annual Rare Disease Day and hosting a daylong program of activities highlighting the rare disease research community. In conjunction with that, NIH Director Dr. Francis Collins will announce the launch of the Genetic Testing Registry. This is an online tool developed by NIH scientists providing health care providers and patients access to information on genetic tests. I also have legislation that would expand on these efforts. This Wednesday, February 29, the rarest of days on the calendar, we will pause to honor those who are working hard to research, diagnose, treat, and empower patients with the rarest of rare diseases. I want to acknowledge the work of the NIH. I'm grateful that they're organizing an event like Rare Disease Day. ____________________”