On the recordSeptember 28, 2016
I rise today to ask my colleagues to honor the life of Trickett Wendler, pictured here, who was a young mother of three who fought and lost her battle with ALS disease, and the lives of so many others who want the right to try to save their lives by passing the Trickett Wendler Right to Try Act of 2016. Now, like so many of my colleagues, we are often visited by our constituents, people who are battling their own diseases, whether it is ALS or Duchenne muscular dystrophy, or different forms of cancer. This is a very simple bill. What it is trying to do is very simple. It is trying to restore freedom. It is trying to give patients and their families hope--the freedom and hope that is being denied them right now by our Federal bureaucracy. This is a bill about people. Coming from my own standpoint, I think all of us recognize ALS as--initially, in its original name--Lou Gehrig's disease. I certainly understood a little bit more about ALS when I heard about Tom Watson's caddy. Then in Oshkosh, WI, a family member of our Lourdes High School family was stricken with ALS--Doug Potarske. He courageously battled the disease and lost his fight as well. I met Trickett Wendler on May 23, 2014, when she came to Washington, DC, with a group of other advocates for ALS cures.…





