On the recordJune 29, 2020
``My simple message to you, Mr. Kelly, and the rest of the committee''--and the rest of Congress--``is: There is no cure or treatments for Pearson's syndrome. Each day is a struggle to keep Maddie balanced so her body is able to better cope with symptoms of this terrible disorder. All we have, as well as many other families across the world, is hope. Please, don't let partisan bickering impact the ability of researchers to discover and innovate new therapies that could save Maddie's life one day. The clock is ticking, and Maddie is waiting.'' Madam Speaker, it simply comes down to this: if you want to develop new drugs, then don't penalize the people who develop them. Don't hold them as the bad guys when we require them. Please come up with something to address COVID-19. {time} 1145
