On the recordMay 22, 2017
May is ALS Awareness Month. It is a time many lend their voices to the fight against ALS and help raise awareness about this devastating disease. ALS is often referred to as Lou Gehrig's disease, after the baseball great was diagnosed with the progressive neurodegenerative disease that affects the nerve cells in the brain and spinal cord. Recently, I had the honor of meeting with people from Pennsylvania to talk about ALS, including Michael Bond, who has ALS, and his wife and caretaker, Karen Bond, both of Edinboro, Pennsylvania; and Jayne Cawthorne of Centre County, Pennsylvania, who is a long-time advocate for the ALS Association. Jayne and her daughter have been visiting with me since I was first elected to Congress, and their advocacy continues to build hope while their association aggressively searches for new treatments and cures. I urge my colleagues to support H.R. 1361, which would ensure access to complex rehabilitation technology such as power wheelchairs and their components and accessories. When you have lost the ability to walk, move your hands, or hold your head up, these technologies are critical. ____________________
Source
govinfo.gov




