I had the pleasure of meeting with advocates from the Tuberous Sclerosis Alliance here in Washington, D.C., last week. It was great speaking with them to express my strong support for the continuation of funding for the Tuberous Sclerosis Complex Research Program in the fiscal year 2020 Department of Defense Appropriations Act. Tuberous Sclerosis Complex, or TSC, is a genetic disorder that can cause tumor growth in vital organs in the human body. It occurs in approximately 1 in 6,000 births. I am proud to share the story of the Miller family, constituents of mine from Bucks County, Pennsylvania. Nearly 5 years ago, Lindsey and her husband, Dave, welcomed their daughter, Ellie, into the world. While Ellie was born with TSC, she has not let it stop her from being just like every other kid. She is developmentally on track, she enjoys preschool with her friends, and she sees her doctors regularly at the Children's Hospital of Philadelphia. However, there is no way to currently gauge how TSC will affect Ellie in the years to come. That is why funding for the Tuberous Sclerosis Complex Research Program is so vitally important. This program has my full support, and I encourage all of my colleagues on both sides of the aisle to support it as well. I thank my colleagues, Mr. Mullin from Oklahoma and Mr. Loebsack from Iowa, for their leadership on this issue.…
On the recordMarch 12, 2019
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