It is estimated that over 30,000 Americans are living with the progressive neurodegenerative disease and condition ALS, or Lou Gehrig's Disease, at any time. That includes dozens in my Pennsylvania district, including Frank Mongiello and former Naval Officer Matthew Bellina. For those impacted by this disease, the toll is extraordinary, not only on their own well-being, but on their family and their finances. Thankfully for Matt and Frank, individuals like Jim Worthington and members of the Newtown Athletic Club have stepped up to offer emotional support and raised more than $200,000 for their cause. While these actions show the commendable efforts of one community, there is more that can be done on their behalf here in Washington. Next week, I will join Matt and Frank in the Nation's Capital to urge not only for essential ALS funding, but for access to experimental drugs. The bipartisan Right to Try Act would remove the barriers to these trial-stage medications for those with a terminal disease like ALS. The compassion of our communities and the long-term benefits of research must not prevent us from taking every single step possible in the here and now to care for those battling ALS. ____________________
Share & report
More from Brian Fitzpatrick
This amendment would prohibit the FTC from bringing cases under Section 5 that deviate from traditional antitrust statutes commonly known as the Sherman Act and the Clayton Act. Since the start of the administration, the FTC has taken…
Several months ago, a bipartisan group of my colleagues and I introduced a bill, the Defending Borders, Defending Democracies Act, and that is exactly what we will be voting on today. First, as far as defending our border from cartels…
I thank the gentleman for yielding. Mr. Speaker, I speak on the House floor tonight, not as somebody who has ever served on the House Energy and Commerce Committee, but as someone who was a freshman in the 115th Congress with a very, very…
The FREED Vets Act mandates that the Department of Education automatically discharge Federal student loan debt for eligible permanently disabled veterans. The staggering student loan debt crisis harms the financial security of many…





