Political Quotes

“I wish to recognize June 24 as Cystinuria Awareness Day and to offer my support to the International Cystinuria Foundation as the organization continues its excellent work promoting knowledge of this disease within the research and medical communities, as well as providing resources for those affected by cystinuria. Cystinuria is an inherited disease characterized by high concentrations of the amino acid cysteine in the urine, leading to the formation of cysteine stones in the kidneys and urinary tract. It is a rare disease that affects roughly 1 in every 7,000 people, including an estimated 130 Granite Staters. Cystinuria is a painful and often debilitating condition. Those who suffer from it can experience kidney stones as frequently as daily, causing many to lose weeks of work each year. Many sufferers use prescription painkillers to cope with the disease, and tragically, some develop substance use disorders. Cystinuria does not discriminate, affecting people of all genders, races, ethnicities, and ages. There is not yet a cure, and the disease is frequently misdiagnosed. I sincerely hope that this day of awareness will help in advancing research into the causes of the disease as well as possible therapies and cures. Because cystinuria is a rare disease, there is an acute need for more aggressive research, including at the National Institutes of Health.…”