On the recordMay 18, 2023
Today, I am on the House floor to talk about a condition that impacts the lives of so many Americans: tuberous sclerosis complex, or TSC. I am honored to speak on behalf of the Cardona family, who shared their child's story with me, and thousands of other families across America who love a child with TSC. TSC is a rare genetic disorder that causes tumors to grow on vital organs, prompting seizures and developmental issues and often delaying children's progress in school. Despite its profound impact on American families, TSC often goes unrecognized. Research into diseases like TSC benefits countless individuals and families battling different conditions. It leads to scientific breakthroughs and discoveries to help cure a wide range of diseases, making better care and quality of life a reality for so many. Today, I invite my colleagues to rally behind rare disease research for conditions like TSC. ____________________
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