Mr. President, I wish to raise awareness about Duchenne muscular dystrophy and the boys and young men who suffer from this devastating disease. Duchenne muscular dystrophy was first brought to my attention 15 years ago, when I met Brian and Alice Denger of Biddeford, ME. The Dengers had two wonderful sons, Matthew and Patrick, who were both born with Duchenne muscular dystrophy. Patrick, now 19, is a student at the University of New England. He recently received his driver's license and enjoys driving in Maine. His brother Matthew was a 20-year-old student at UNE when he died from the disease about 3 years ago. The Dengers also have a daughter, Rachel, with juvenile diabetes. They are a loving and courageous family whose strength and spirit directly inspired me to become involved in the fight for research funding to combat muscular dystrophy. Brian Denger was the first to tell me of the terrible progression of this type of muscular dystrophy. Symptoms begin in early childhood, and boys quickly experience severe and rapidly progressing muscle degeneration, which often results in their losing the ability to walk. Tragically, most die prematurely as a result of muscle-related cardiac and respiratory problems.…
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