On the recordJune 10, 2015
I thank the chairman for the effort he is going through and the consideration he is giving with this. Many times, we have the opportunity to talk to families and deal with issues. In this particular instance, we have an opportunity. As I mentioned, we are right on the cusp of very significant research. Leveraging a small additional amount now would have tremendous ramifications. I was just completely struck by the fact that I saw a person--a young boy in his teens, confined to a wheelchair, like so many of those afflicted with this terrible disease have had to suffer through, and as a result of those clinical trials, to see that person no longer in a wheelchair and up and ambulatory and walking, those are the type of dramatic improvements we are on the cusp of right now. That is why this amendment just seeks to get an incremental increase with that because I think it would be leveraged and have enormous significance as a result. I reserve the balance of my time.
