Political Quotes

On the recordJuly 15, 2015
To thousands of Americans living with ALS and end-stage Parkinson's disease, the Steve Gleason Act literally means the difference between the ability to speak and silence. I had the great privilege 2 weeks ago to spend about an hour with Steve and his mother in Steve's home in New Orleans. You have heard about Steve's exploits on the football field and how he inspired so many in that first return back to the Superdome after Katrina. But Steve lost his ability to speak and is wheelchair bound due to ALS. This happened earlier this year. His 2011 diagnosis could have been a tragedy, but he turned it into something amazing and good. When I visited with Steve, it was amazing to see the fire and the spirit in his eyes because, despite all that has happened to him, he is determined to help a lot of people. He told me: I am not going to give up until you guys pass this legislation so we could help so many others who don't have access to this technology that I have been blessed to have. So Steve started Team Gleason, an advocacy organization. Its main priority is to raise awareness for ALS. And Steve is communicating, using this amazing technology, but he knows not all individuals with ALS or end-stage Parkinson's have the resources to be able to afford these expensive devices.…
Said by
Charles Boustany
Republican · Louisiana
Source
govinfo.gov
Jul 15, 2015

Share

More from Charles Boustany

Sep 14, 2016

I am here to offer an amendment to H.R. 5226, the Regulatory Integrity Act of 2016. This amendment is based on legislation I proposed earlier in the year. By creating a new process that requires the administration to keep a clear…

govinfo.gov
Sep 14, 2016

I thank the gentleman. The American people want transparency. I don't understand why our friends on the other side of the aisle would be opposed to transparency. All we are asking is that these agencies be truthful and very clear with the…

govinfo.gov
Jul 12, 2016

My amendment would prohibit the use of funds by the Secretary of the Interior for the purpose of implementation, administering, or enforcing any rule or guidance similar to the proposed guidance that the Bureau of Ocean Energy Management…

govinfo.gov
Jun 21, 2016

I am pleased to yield 4 minutes to the gentleman from Tennessee (Mr. Roe), who is the chairman of the Physicians Caucus.

govinfo.gov

Other voices in this conversation