Mr. President, today I wish to celebrate April 17 as World Hemophilia Day where we recognize the serious challenges of the 20,000 Americans who suffer each day from hemophilia and where we raise awareness to fight for a cure. Hemophilia is a rare genetic disorder that prevents an individual's ability to form a proper blood clot. Patients with hemophilia need immediate access to care and lifesaving therapies. There is currently an enormous discrepancy in the level of care available to patients with hemophilia. While some are diagnosed very young and have medical care throughout their life, most do not or do not have the access to diagnosis and treatment they need. As a physician, I have treated patients with hemophilia, and I know how debilitating the health problems endured by those living with hemophilia can be. If left untreated, a bleeding episode can lead to terrible pain, chronic joint and muscle damage, serious injury, or even death. I am hopeful that through attention, diligence, and raised awareness we might prevent more complications, unnecessary procedures, and disabilities so often caused by these diseases. As we increase our understanding and awareness of hemophilia, we also increase our ability to find treatments and eventually, a cure for this disease. I'm proud to stand today in support of all Americans with hemophilia on World Hemophilia Day. ____________________
On the recordApril 13, 2016
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