07/25/2023
https://www.congress.gov...
"It is also important that we include patient perspective and priorities into our therapy development."
"Patients voices are critical to this process and thank you for your leadership."
"I have heard from Georgians across the State who have been personally affected by rare and serious diseases, from ALS to Barth syndrome, to many others, and despite the differences in these diseases, ..."
"Lowering or eliminating onerous fees is something I will keep pushing for through legislation."