On the recordJanuary 17, 2018
I thank the gentleman from California for joining us this evening. His words are a clarion call to sympathize with, empathize with, and support parents who have children with refractory epilepsy and other diseases that lead to chronic and, at times, unstoppable seizures. There is a desperation in the voice of parents who have children who have these seizures. That moves me. A child's eyes can roll in the back of their head. They can turn blue, gasping for air. The gentleman from California (Mr. Correa) referenced circumstances where a parent would reach out and ask for help. I yield to the gentleman to maybe further explain how it makes you feel as a policymaker when you have got someone who wants to cut through the normal discord and disruption in the policymaking process, and they just want their child to be able to breathe in the absence of these debilitating symptoms. If the gentleman wouldn't mind, I yield to him for that explanation.
Source
govinfo.gov




