On the recordNovember 1, 2017
I wish to highlight the Step Forward to Cure TSC Miami Walk, which took place last weekend at my alma mater, Florida International University. Tuberous sclerosis complex, or TSC, is a rare genetic disease that causes uncontrollable tumor growth across the face, body, and organs of impacted individuals. Unfortunately, there is no cure for TSC. South Florida's own hero, Max Lucca, pictured here, was diagnosed with TSC when he was only 2 weeks old. Now, he is 9 years old, and he has thrived because of the constant love and care provided by his parents, Vanessa and Max. The TSC Miami Walk brings together patients like Max Lucca and their families with supporters who are committed to improving their lives. Every year, the walk plays an essential role in advancing lifesaving research and programs to increase awareness of TSC, and expanding the network of resources that improve the lives of patients and their families. Mr. Speaker, I would like to recognize the work of Vanessa Vazquez; her husband, Max; and all of the other activists who are so needed from the Tuberous Sclerosis Alliance who work so hard to make this walk a reality. I want to thank everyone who came out to FIU last Saturday and made this event a resounding success. Due to your efforts, due to your commitment, I am confident that we will be able to increase the research and education needed to find a cure for this tragic disease. Meanwhile, go Max Lucca. Commit to Ending Pediatric HIV/AIDS Worldwide





