On the recordOctober 22, 2015
Mr. Speaker, this month we recognize Down Syndrome Awareness Month. As we celebrate the abilities of more than 400,000 Americans living with Down Syndrome, it is important that we address some of the problems these individuals and their families face. Families and patients who are affected by Down Syndrome face many related health issues. I had the privilege of meeting a very inspiring patient during the Energy and Commerce's work on 21st Century Cures legislation. Madison, a young girl diagnosed with Down Syndrome, had four major open-heart surgeries all before her 3rd birthday. An estimated 50 percent of children born with Down Syndrome have some form of heart defect, like Madison; yet, her surgeries are still fairly new in the medical world. Our Cures legislation encourages additional research for medications and procedures that could benefit children like Madison. We must continue our work to promote a better quality of life for all patients across the Nation. ____________________
