On the recordJune 17, 2020
I am here to talk about the nomination of Justin Walker to the D.C. Circuit Court of Appeals, but let's start with Conner Curran. Justin Walker actually has met Conner--not really, but I introduced him to Conner through this picture during his nomination hearing in the Judiciary Committee. Several years ago, Conner was diagnosed with Duchenne muscular dystrophy, a degenerative life-threatening disease which presently has no cure. Most people who have the disease die by their mid-20s. Conner was diagnosed at age 5. I met Conner a couple of years later. There is probably nobody who has inspired me more with his courage, his energy, his strength of character than Conner Curran and his wonderful family who live in Ridgefield, CT. His parents were told, at the time of his diagnosis, that this beautiful young sweet child would slowly lose his ability to run, lift his arms, hug them, and he would need complex care for the rest of his life. He would need multiple specialists that would cost tens of thousands of dollars each year, which they could not afford. But they made it possible or, actually, it was made possible by the Affordable Care Act. Now, because of that act, he cannot be denied care. He is alive. He is not giving up. He is fighting for both a cure and the Affordable Care Act. He is not the only one. There are 1.5 million people in the State of Connecticut alone and millions more around the country living with preexisting conditions.…





