Political Quotes

“last month the Senate passed Senate Joint Resolution 151 declaring the week beginning April 10, 1994, as National Primary Immune Deficiency Awareness Week. I am pleased that so many of my colleagues, including the majority and minority leaders, joined me in supporting the resolution. Primary immune deficiency is a genetic defect to the immune system that presently affects 1 in 500 persons, most of them children, in the United States. This condition often provokes a lifetime of serious illness and sometimes results in death, yet many doctors and families know little about the disease. Primary immune deficiency is frequently misdiagnosed and not properly treated. Therapy and medicines which can significantly improve the health of those suffering from primary immune deficiency, protect their vital organs, and save their lives do exist, but many families and patients suffer alone with little medical or psychological support. The Modell family from Connecticut has suffered through the tragedy of losing a loved one to primary immune deficiency. Jeffrey Modell struggled bravely with this disease until it took his life at the age of 15. His parents Fred and Vicky Modell experienced the enormous medical, emotional, and financial difficulties of dealing with the primary immune deficiency on their own.”