On the recordJuly 1, 1999
Over the past decade the science of identifying genetic markers for diseases has evolved at an astonishing pace. For an increasing number of Americans science fiction has become reality--their doctors can now scan their unique genetic blueprints and predict the likelihood of their developing diseases like cancer, Alzheimer's or Parkinson's. Armed with this knowledge, individuals and families can make informed decisions about their health care including, in some cases, even taking steps to prevent the disease or to detect and treat it early. Unfortunately, phenomenal advances in our knowledge about genetics have outpaced the protections currently provided in law. Thus, the potential also exists for this remarkable new information--which is making such a difference in people's lives in terms of their health--this information could always be used by health insurers, employers, or others to deny health coverage or job opportunities to people. We know the Federal and State laws currently offer only a patchwork of protections against the misuse of genetic information.
Source
govinfo.gov




