04/18/2023
https://www.congress.gov...
"But Axel and his parents are not alone."
"The legislation that I introduced with Senator Casey, The Preserving Access to Life-Saving Medications Act, would require drug manufacturers to provide early notification to the FDA whenever there is ..."
"For some of these drugs, no substitutes are available."
"Thank you very much, both of you, for your work on all of this. And, Mr. Chairman, thank you for holding this hearing."