03/12/2014
https://congress.gov...
"Thanks to the support of Chairman Rogers and Ranking Member Jackson Lee, in 2010 the Travel Promotion Act was enacted..."
"We appreciate Congress working to expand the pathway so that patients suffering from other life-threatening and rare diseases can benefit as well."
"This isn't worth it anymore, it is easier for me to head overseas than it is to try to deal with what is an untenable regulatory environment."
"That worries me greatly, and I hope you will take a hard look at this."