On the recordDecember 11, 2018
Mr. Speaker, I rise today to express my support for H.R. 2410, the Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2017, that passed the U.S. House of Representatives on February 26, 2018. Today, the House of Representatives passed S. 2465, which is the Senate-amended version of H.R. 2410. As a co-sponsor of H.R. 2410 and the immediate past Chair of the Congressional Black Caucus, I rise to clarify the Congressional intent of this important legislation. I commend my friends, Representative Danny Davis from Illinois and Representative Michael Burgess from Texas, for introducing H.R. 2410. I have been a longtime advocate for those with sickle cell disease and I am a proud co-sponsor of the bill in this Congress and in previous Congresses. There are approximately forty-four hundred people with sickle cell disease in my home state of North Carolina. My hope is that someday there will be none. Sixty-five percent of individuals with sickle cell disease in North Carolina have at least one emergency room visit per year--that is no way to live. We should do all we can to help improve patients' lives, advance treatment, and find a cure.…





