Political Quotes

“Mr. Speaker, I rise today on behalf of the 30 million Americans affected by a rare disease. An astounding 95 percent of rare diseases have no approved treatments or cures. My bill, the OPEN Act, seeks to change that. The OPEN Act provides incentives for drug makers to repurpose major market treatments for rare disease patients. It could open the door for a surge in biotechnology jobs and investment. Most importantly, the OPEN Act would help make sure those suffering from a rare condition can finally find safe, effective, affordable medication. I was inspired to write the OPEN Act after meeting with folks who live with rare diseases, like Ashleigh Pike, Candace Lerman, and Kelly Freeman from Florida. The ideas that shaped this legislation came from those who it will help most, rare disease patients. After all, rare diseases are not a rare problem. The OPEN Act has the potential to bring hope to millions of patients and their families. ____________________”