Mr. President, one of the things that marks service as a U.S. Senator is the chance to meet really remarkable individuals, and among the remarkable individuals I have had the chance to meet in my time in the Senate, there are few, if any, who are more impressive or memorable than those who have been diagnosed with ALS, commonly known as Lou Gehrig's disease. Competing with them for being impressive and noteworthy are the friends and family and advocates who become their support system and their caregivers. It is not just those with the diagnosis, but it is also the family, friends, and caregivers who face incredible bravery. I remember someone once saying that a special kind of courage is maintaining good morale in the face of terrible circumstances, and few circumstances are more terrible than a diagnosis of ALS amyotrophic lateral sclerosis. We know how it ends. We know it is always fatal. There is no treatment. There is no cure. There is nothing to halt or reverse the effects of ALS. Those of us who have ALS patients visit us watch the decline as they move from people who can walk to people who need a wheelchair, to people who need an increasingly complex wheelchair. For all this suffering and for all the certainty of how it ends, we still make ALS patients and their family members wait 5 months before they can begin to receive the Social Security Disability Insurance benefits they earned by contributing into Social Security.…
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