Today on Capitol Hill there are hundreds of nurses, chaplains and social workers, the people who deliver hospice care at the bedside, here to promote an honest discussion and careful analysis of how to help individuals and their families grapple with the final chapter of life. It may be the hardest issue in health care, and the fear that it invokes can be a powerful weapon. For most of us, the majority of health care we receive in our lifetime will be administered in those last few months. It's when we need the most doctors and nursing care, medical procedures and oftentimes in hospitals. But we know from scientific studies that when patients are educated about their treatment options, they make decisions that are not only aligned with their personal preferences, but shared decision-making relieves stress and anxiety. Ironically, sometimes getting less intensive help, like in a hospice, not only improves the quality of life, these patients, many of them actually live longer. From a public policy perspective, it's perverse that Medicare will pay for almost any medical procedure, yet not reimburse doctors to have a thoughtful conversation to prepare patients and their families for the delicate, complex, and emotionally demanding decisions surrounding the end of life. That's why I sought to direct Medicare, in the Affordable Care Act, to cover a voluntary discussion with the doctor about living wills, power of attorney, and end-of-life preferences.…
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